Disease-Specific Groups
Disease-specific groups are often volunteer-led organizations that offer various forms of support to others with the same condition. Examples of the types of support that may be available include educational events, educational materials, newsletters, support meetings, advocacy, and fund-raising for research.
Lupus
- BC Lupus Society: Suite 200 - 1645 West 7th Ave Vancouver, B.C. V6J 1S4 Ph: (604) 714-5564 Toll Free: 1-866-585-8787 www.bclupus.org
- Lupus Canada: www.lupuscanada.org
- Lupus Foundation of America: www.lupus.org
- Lupus Research Institute: www.lupusresearchinstitute.org
Ankylosing Spondylitis
- Ankylosing Spondylitis Association of British Columbia: Ph: (604) 531-8307 www.asif.rheumanet.org/canadabc.htm
- Ontario Spondylitis Association: www.spondylitis.ca
- Spondylitis Association of America, Inc.: www.spondylitis.org
- National Ankylosing Spondylitis Society (UK): www.nass.co.uk
- Ankylosing Spondylitis International (ASIF): www.asif.rheumanet.org
Fibromyalgia
- The British Columbia Fibromyalgia Society: Ph: 604-878-7707 Toll Free: 1-888-353-6322 www.mefm.bc.ca/bcfm
- FM-CFS Canada: http://fm-cfs.ca/home.html
- National ME/FM Action Network: www.mefmaction.net
Scleroderma
- Scleroderma Association of BC: Support group for people with the auto-immune connective tissue disease scleroderma, and related conditions such as CREST syndrome, Raynaud's phenomenon, and Sjogren's syndrome.
- Scleroderma Foundation: www.scleroderma.com
- Raynaud's & Scleroderma Association: www.raynauds.org.uk
- Scleroderma Research Foundation: www.srfcure.org
- International Scleroderma Network: www.sclero.org/index.html
Behcet's Syndrome
- Association de Behcet: www.association-behcet.org
- The American Behcet's Disease Association: www.behcets.com
- Behcet's Organisation Worldwide: www.behcets.org
Childhood Arthritis
- American Juvenile Arthritis Organization: http://ww2.arthritis.org/communities/juvenile_arthritis/about_ajao.asp
Ehlers-Danlos Syndrome
- Canadian Ehlers-Danlos Association: www.ehlersdanlos.ca
Lyme Disease
- Lyme Disease Foundation, Inc: www.lyme.org
- Lyme Disease Network: www.lymenet.org
- American Lyme Disease Foundation: http://aldf.com
Psoriatic Arthritis
- National Psoriasis Foundation (USA): www.psoriasis.org
Raynaud’s Phenomenon
- Raynaud's & Scleroderma Association: www.raynauds.org.uk
- The Raynaud's Foundation: http://members.aol.com/raynauds
Sjogren’s Syndrome
- Sjogren's Syndrome of Canada: www.sjogrenscanada.org
- Sjogren's Syndrome Foundation: www.sjogrens.com
Still’s Disease
- International Still's Disease Foundation: www.stillsdisease.org
Takayasu's Arteritis Association
- Takayasu's Arteritis Association: www.takayasus.org






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