Disease-specific groups are often volunteer-led organizations that offer various forms of support to others with the same condition. Examples of the types of support that may be available include educational events, educational materials, newsletters, support meetings, advocacy, and fund-raising for research.
Lupus
- BC Lupus Society: Suite 200 - 1645 West 7th Ave Vancouver, B.C. V6J 1S4 Ph: (604) 714-5564 Toll Free: 1-866-585-8787 www.bclupus.org [1]
- Lupus Canada: www.lupuscanada.org [2]
- Lupus Foundation of America: www.lupus.org [3]
- Lupus Research Institute: www.lupusresearchinstitute.org [4]
Ankylosing Spondylitis
- Canadian Spondylitis Association: www.spondylitis.ca [5]
- Spondylitis Association of America, Inc.: www.spondylitis.org [6]
- National Ankylosing Spondylitis Society (UK): www.nass.co.uk [7]
- Ankylosing Spondylitis International (ASIF): www.asif.rheumanet.org [8]
Fibromyalgia
- The British Columbia Fibromyalgia Society: Ph: 604-878-7707 Toll Free: 1-888-353-6322 www.mefm.bc.ca/bcfm [9]
- FM-CFS Canada: http://fm-cfs.ca/home.html [10]
- National ME/FM Action Network: www.mefmaction.net [11]
Scleroderma
- Scleroderma Association of BC: [12] Support group for people with the auto-immune connective tissue disease scleroderma, and related conditions such as CREST syndrome, Raynaud's phenomenon, and Sjogren's syndrome.
- Scleroderma Foundation: www.scleroderma.com [13]
- Raynaud's & Scleroderma Association: www.raynauds.org.uk [14]
- Scleroderma Research Foundation: www.srfcure.org [15]
- International Scleroderma Network: www.sclero.org/index.html [16]
Behcet's Syndrome
- Association de Behcet: www.association-behcet.org [17]
- The American Behcet's Disease Association: www.behcets.com [18]
- Behcet's Organisation Worldwide: www.behcets.org [19]
Childhood Arthritis
- American Juvenile Arthritis Organization: http://ww2.arthritis.org/communities/juvenile_arthritis/about_ajao.asp [20]
Ehlers-Danlos Syndrome
- Canadian Ehlers-Danlos Association: www.ehlersdanlos.ca [21]
Lyme Disease
- Lyme Disease Foundation, Inc: www.lyme.org [22]
- Lyme Disease Network: www.lymenet.org [23]
- American Lyme Disease Foundation: http://aldf.com [24]
Psoriatic Arthritis
- National Psoriasis Foundation (USA): www.psoriasis.org [25]
Raynaud’s Phenomenon
- Raynaud's & Scleroderma Association: www.raynauds.org.uk [26]
- The Raynaud's Foundation: http://members.aol.com/raynauds [27]
Sjogren’s Syndrome
- Sjogren's Syndrome of Canada: www.sjogrenscanada.org [28]
- Sjogren's Syndrome Foundation: www.sjogrens.com [29]
Still’s Disease
- International Still's Disease Foundation: www.stillsdisease.org [30]
Takayasu's Arteritis Association
- Takayasu's Arteritis Association: www.takayasus.org [31]
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